Thursday, January 22, 2015

Pictograms for medication administration

How do you explain to someone who is illiterate when they need to take medications?  How about if there are 5 medications that they have to take?

I have joined with the pharmacy team from the Children's Hospital in Ottawa (CHEO) to develop and test pictograms to help patients understand how to take their medications.



Take 2 pills twice per day.

Take 5ml twice per day

Take morphine 1/2 tablet twice per day, when having pain 
Take 5ml every 4 hours

Tylenol: take for medium pain or fever

Welcome Back!

After almost 5 months in Canada, I'm back in Bangladesh.  Returning to the hospital was great!  The staff were happy to see me, especially the nurses who are keen to show off their improved English skills.  As part of the World Child Cancer funding we are able to give the nurses English lessons.  The lessons are important as many of the resources for pediatric oncology nursing that they need to access are in English.  Many of them have improved dramatically and are no longer shy to speak with me!

I am thrilled to have several visitors from Canada who are going to be working with me for the next few months.  Debbie is a nurse who I worked with in Canada, she brings 27 years of nursing experience to the ward. She'll be working with the nurses to continue to improve their practice.  She'll also be spending some time with the kids in the playroom.

Mari is a nutritionist and Masters in Public Health candidate from the University of Toronto who is doing a 3 month placement on the ward as part of her training.  She's working on nutrition related issues, assisting the doctors and nurses to improve the nutritional status of the children as more than half are moderately or severely malnourished.

The playroom is now open almost everyday as a dedicated team of volunteers comes to play with the children.  

Mari (left) and Debbie exploring the markets of Dhaka!

Wednesday, August 27, 2014

Cleanliness

Infections are the leading cause of death in children with cancer in Bangladesh.  When children receive chemotherapy, it significantly reduces their ability to fight infections; illnesses which would be mild in a healthy person can be life-threatening.  

Chicken pox is still prevalent in Bangladesh, as there is no universal immunization program, leading to frequent exposure in children with cancer. When a child with cancer develops chicken pox, chemotherapy needs to be stopped, delaying the cancer treatment and increasing the risk of relapse. In these circumstances, I have no choice but to watch, wait, and hope that the child is able to recover. Treatment is limited to support with antibiotics and antiviral medications; we don’t have access to the much more effective (and expensive) treatment which is available in Canada.  (If you needed a reason to get your child vaccinated against chicken pox, hopefully this convinces you!)

Better management and treatment of this vulnerability to infections is a priority for the BSMMU project in Bangladesh, as this could significantly improve survival rates. The good news is that most of the infection prevention interventions are not expensive or technologically complex. Meticulous hand hygiene practices by health care workers, parents and children themselves have the potential to make a big impact. Unfortunately, getting everyone to wash their hands more often is a lot more difficult than it sounds. Even in developed countries, we are still figuring out how to get people to wash their hands when the should. A recent session with the nurses revealed that they know exactly when the SHOULD wash their hands, they just don’t do it! Doctors, it turns out, are even worse.

That is not the only challenge to ensuring hand hygiene is practiced. There have been several times in the past 6 months, when the ward ran out of alcohol based hand sanitizer for weeks!  What is striking is that no one else seemed that concerned; when I asked why this had happened, I was met with ambivalence and shoulder shrugging. I still don’t fully understand what was the reason why we ran out. One of the senior residents tried to convince me that we shouldn’t bother filling up the dispensers more than once per day, as the dispensers will just get empty again quickly because parents will use more cleanser if we refill it more often!

The recent ward cleaning day has been followed up by a program to more closely supervise the activities of the cleaning staff; making sure that they wash the floors several times per day and don’t just sleep all day. We have also undertaken a cockroach eradication program, coupled with much more strict enforcement of rules prohibiting the storage of food on the ward.


Randi, an American volunteer nutritionist, is running a weekly hygiene education session for parents. This session explains the unique risks for children with cancer, emphasizing the importance of hand hygiene, safe food handling practices and avoiding anyone who is sick. We have teamed up with Unilever to provide bars of soap to all parents who attend the session.

Poster explaining the system for where to place different types of waste.  Until recently the cleaners were sorting everything by hand, including  needles!
I recently ordered 100 bottles of this alcohol based hand cleanser.  Every parent will get a bottle when their child is admitted.
The changes are slow and painstaking, but we are making progress.

Friday, August 8, 2014

Playroom Opening Ceremony

The playroom has been up an running for several months.  On Thursday we held a small opening ceremony to officially open the room.  Heather Cruden, Canadian High Commissioner to Bangladesh, attended at the chief guest as well as the Vice Chancellor of BSMMU.

Heather also distributed welcome packs to all the children on the ward.  Thanks to Dr. Loutfi's contribution for sponsoring these!

Here are a few photos from the event as well as a short article which was printed in the Financial Express.


http://www.thefinancialexpress-bd.com/2014/08/08/49309


Handing out welcome packs!

Heather with the medical team from the department.

With the nursing team.

With all of the playroom volunteers!


Sunday, July 27, 2014

Toy Distribution for Eid

Here are some photos from yesterday's toy distribution on the ward.  You'll recognize the first little girl as she was given a toy during the an earlier toy distribution in April.  Her name is Jim and she's doing well with her treatment for leukaemia.  She's getting bigger!

All the children received new pillowcases, which are made by a Brittany, a young girl in Australia who had cancer and now make the pillowcases to encourage other kids with cancer! https://www.facebook.com/pillowcases4oncologykids








Playroom!

Play therapy is now happening 2-3 days per week at BSMMU!
The playroom is finally finished!  Last week Gwen decorated the room with beautiful wall stickers, some of which were donated by TinyMe.  Play therapy is now available with volunteers 2-3 times per week!  The kids and parents now understand the routine: remove shoes and wash hands before entering the playroom.

At first we had a lot of tears whenever a child had the leave the playroom as he or she would want to keep the toys, but now everyone seems to better understand the routine. Every couple of months we do distribute gifts of toys to all the children on the ward.  These are toys which are donated and but aren't suitable for the playroom: stuffed toys or those that aren't durable enough for repeated use.


Hot air balloons to brighten the walls.



Putting stickers on the glass doors, so that no one walks into them!



Underwater scene on the ward.

Jungle scene above bed 12.

Thursday, July 10, 2014

Vist to Sylhet

This week, as part of the World Child Cancer visit, I also visited Sylhet as this will be another satellite centre.  Afiqul, Karen and I taught a workshop on pediatric cancer and palliative care while we were there.  The visit was very well received and we have invited 2 pediatric junior doctors and 2 nurses from the pediatric ward to come to BSMMU for a 1 month training period when they can work on the children's cancer ward and receive extra training.  At this time there are no pediatric cancer specialisits in Sylhet, there are only pediatricians who are doing some cancer treatment.  This is not ideal as they don't have sufficient specialized knowledge and training.  We hope that this one month training will be the start of more detailed and indepth training to improve the quality of care which is being provided in Sylhet.

Unfortunately we didn't get to visit the ward as our visit was cut short due to flight delays.

Here are some photos from Sylhet.  This was my first time travelling outside of Dhaka in Bangladesh!
Getting off the plane, 2 hours late!

Driving to the hospital, through tea plantations. 
Speaking at the Workshop on Childhood Cancer

Some of the workshop attendees; local paediatricians.

Afiqul making a passionate speech about ensuring that all children with cancer get access to the highest quality treatment available.

Walking back across the runway to board the plane home, also 1 hr late.